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It is important that anyone considering donating a kidney is aware of the risks involved. 

Firstly let me say that altruistic donation (the operation and recovery etc) is no different to someone donating to a loved one. Here are some statistics *.

In the UK between 1 April 2009 and 31 March 2010:

  • 3,709 organ transplants were carried out, thanks to the generosity of 2,021 donors.
  • 978 lives were saved in the UK through a heart, lung, liver or combined heart/lungs, liver/kidney, liver/pancreas, heart/kidney or liver/kidney/pancreas transplant.
  • A total of 2,739 patients’ lives were dramatically improved by a kidney or pancreas transplant. 160 of whom received a combined kidney/pancreas transplant.
  • A further 3,099 people had their sight restored through a cornea transplant.
  • A record number of 552 non-heartbeating donor kidney transplants took place and accounted for one in five of all kidney transplants.
  • Living donor kidney transplants are increasing – 475 in 2004-05, 589 in 2005-06, 690 in 2006-07, 831 in 2007-08, 927 in 2008-09 and 1,038 in 2009-10 – and now represent more than one in three of all kidney transplants.
  • Almost a million more people pledged to help others after their death by registering their wishes on the NHS Organ Donor Register, bringing the total to 17,400,213(September 2010).
  •  

As you can see from the above, more than 1 in 3 kidney transplants are via living donors.  There may only have been a small amount of altruistic donors so far, but the law allowing that only came into force at the end of 2006.

Did you know that a kidney transplant from a deceased person – the kidney has a life expectancy of only around 10 years. A kidney transplant from a Living Donor – the kidney has a life expectancy of around 20 years!

Yes there are risks involved. There are in any operation.  What must be pointed out though is the doctors would not allow this operation to take place on any individual if the risks were not minimal. The rigorous tests a donor is put through prior to being accepted as a donor makes sure they are very fit and healthy.  It was explained to me that a reaction to the anaesthetic could occur. Something unexpected could occur during the operation itself.  This is very unlikely but no operation is without some risk however small.  There could be post op complications but again, very minimal and doctors are on top of watching out for any complications. It is also up to the donor that once they leave hospital to make sure they take care of themselves during recovery and seek advice from a doctor should they suspect anything unusual.  Regular checks after the operation will ensure kidney function is performing as it should. 

Immediately after the operation there is a small risk of chest infection, being a non smoker certainly reduces that risk …. but it can happen after any operation, even though the risks are small.  A blood clot could form – again very unlikely.  I asked what precautions are taken to prevent blood clots and was told that my bloods ability to clot was tested before hand. That for the operation I would wear these special long socks – anti-embolism stockings (do a google but I am not sure if they are full length ones or below knee ones).  Some special calf wraps that gently compress the lower leg to aid blood circulation.  I would be given heparin to thin the blood slightly. I would be constantly monitored.  More details on the above can be given by any Transplant unit or your doctor.

As for living with only one kidney afterwards that does not present a problem to me.   The remaining kidney will slightly enlarge as it takes on some extra work.  There is no reason why I can’t go back to a totally normal life afterwards.  Very active people have donated and carried on with an active life afterwards just as before. Some people are born with only one kidney but don’t know it. They feel perfectly well with just one. I am no more likely to get kidney disease becuase I only have one kidney.  Generally a kidney problem would affect both kidneys, so having one would present no greater risk.  Playing a contact sport (boxing, rugby etc) where a blow could occur to a kidney should be avoided if possible or a protective belt worn. I don’t think I am likely to take up one of those sports! …. me = wimp!   After the operation the GFR levels do drop slightly then then rise again.  There can be slightly less function with one kidney but one has to remember that we have a surplus of available “function” that is never used. So a slight drop in function and the kidney still works just as good as before. There is an extra risk of hypertension occuring later in life but a good and healthy lifestyle is the rule to follow.  I had all the risks thoroughly explained to me and I asked many questions relating to them. I also did a lot of research myself as to what complications donors have had. Some have had nerve pain for a while afterwards, digestion problems and other things that with time disappeared. Every answer given was more than acceptable to me as a very lo risk indeed.   With only one kidney drinking sufficient amounts of water each day is helpful. If possible NSAID’s should be avoided as they “may” cause a problem for the kidney.  Normally with two kidneys not a great problem but when you only have one then perhaps being that little bit more aware of what does or does not go into our bodies should be considered.  There can also be a huge emotional surge within us. Some people have told me they got quite bad depression, rather like post natal depression that lasted many weeks. If that happens to you, don’t just take it. Ask for help in dealing with it.

To me there is a greater risk each time I get into my car and go on the road where I am likely to come across drivers with no licenses, drivers under the influence, drivers that are just plain bad drivers. They don’t wear stickers on their cars saying “avoid me”. Yet I choose to take that risk.    People who smoke know they are taking a huge risk and putting  their health at risk.  People who regularly go out and drink excessively…. they know they are damaging their health, yet still do it!  People climb huge mountains; jump out of airplanes;  take part in extreme sports – they love the adrenaline rush and the challenge, yet know there are risks.   They are hailed as amazing people for achieving these things – yes they are – they have far more courage than I do. We all do things, knowing the risks, accepting them – yet the risks involved in donating a kidney to me are far far far less than a lot of those risks. 

* Statistics taken from here   http://www.uktransplant.org.uk/ukt/statistics/statistics.jsp
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63 Responses to “Living with one kidney – Living kidney donation – risks explained”

  • Diane:

    Hi Tony,
    lol .. and now keyhole is the norm ….

    cheers
    Di

  • wayne:

    Hi I am thinking of donating a kidney to a friend about to start on dialisis,we are both in our sixties.Ive previously had my prostate removed so I am familiar with recovery from major surgery.What I am concerned about is the long term affects on my body,I eat healthy and exercise alot.Is their any research on this. thanks Wayne

  • Diane:

    Hi Wayne,
    Different surgeries can have different recovery times and recovery effects. But the hospital will tell you what to expect as far as short term after effects of the surgery.

    As far as research on only one kidney, I assume you read the post to which you are replying …as you can see living with one kidney does not affect you. People are born with only one kidney and don’t know it until they have to have an mri for something or similar and it gets noticed only one kidney. I even know someone who put themselves forward to donate and was turned down as they only had one kidney but they didnt know .. they would run the London and New York Marathon each year.

    Yes lots of research would have gone into this otherwise they would not allow people to donate to total strangers if there was any long term health issues associated with kidney removal.

    Of course there can be complications with the operation itself which could lead to long term problems but those you would have to discuss with the transplant coordinator.

    As well as eating healthily make sure you also always drink enough water as the kidneys whether one or two , need water to help flush the toxins through.

    Any long term affect would be personal to that person so really only your transplant coordinator and the team can answer that 100% for you. But in general no long term bad effects from donating a kidney.

    Di

  • Lyle:

    Sooooo, just a question, why do we have two kidneys, so we can donate one later..?? A legit question.. We don’t need two lungs either, but I assume we have two because as we age our lung capacity lessens and having two leaves some room for that.. I guess the same could be said for kidneys, but what do I know..

  • Diane:

    Hi Lyle,
    That is a very good question indeed and I am not sure anyone knows the answer. But isn’t it good that we can give one away! Maybe that was partly behind the design of our body! :) Our kidneys do not function to full capacity. My left worked at 58% and my right at 42% – I gave my right one away. you can lose about 85-90% of total kidney function before dialysis is required. So even with one kidney under performing, so to speak, it is still doing the job it should. When one is removed the other takes on some extra, but not all. So I presume my remaining kidney is now functioning at say 60% plus? A question I will ask at my next check up in a few months time!! It is not uncommon for someone to be born with either one kidney or three kidneys!

    No we don’t need two lungs either. Though I am not sure whether a person with only one lung would notice the difference or not. But as you say … we can do without one. Our liver, another amazing organ. Regrows … so we can donate a lobe of it and in about 12 weeks time it has grown again.

    Maybe we need two lungs because we get lots of chest infections, colds etc and rather than have one huge lung :) two smaller ones evenly balance the upper chest nicely and also allows for one to take more strain than the other? who knows!! The kidneys work exceptionally hard removing toxins and the liver also works exceptionally hard. In todays society when there are so many pollutants we either knowingly, or unknowingly, put into our bodies our organs need to work that bit extra perhaps …. so having two lungs, two kidneys and a regrowing liver – is a good idea, lol!!

    Makes you wonder why we don’t have two hearts!!

    I love your question, it is one I have often asked myself. I doubt anyone can give a provable answer, we can only guess. But what I do know is, whatever the reason, it means we can help save someone’s life by giving a kidney, lobe of liver and even part of a lung.

    I just wish people would sign the organ donor register. It saddens me greatly to know people are dying needlessly (sp?) and organs are being buried or burned. Such a waste.

    If you ever find an answer to your question I think there will be a lot of people interested in the answer!! until then we can only guess.

    I suppose if you look at a diagram of the body, it does look rather neatly laid out with two lungs either side, same with two kidneys then the heart and liver sort of stuffed in between :) then all balanced out with the entry and exit points at either end !

    Di
    x

  • wayne mcconachy:

    Hi Diane,just to keep intouch,I have since last enquiry decided to go ahead with donating a kidney.Two days ago I discussed this with the recipient and he was over the moon at my decision.Now I am starting the process to see if I am a compatible donor.
    My final decision to donate was made after speaking to a friend who had donated to his son.
    yours Wayne

  • Diane:

    Hi Wayne,
    You won’t regret your decision. I am praying that you will be compatible. Please do let me know how things progress.
    All the very best!
    Di
    x

  • Joanna:

    I’d be interested to know whether any random (a word I prefer to altruistic!) living kidney donors have had any problems with travel insurance post-surgery? I’m going through the work up, hoping to donate a kidney in the next few months and have wondered whether this issue has come up with any of you.
    Joanna

  • Diane:

    Hi Joanna,
    ummm, can’t say I class myself as a random donor, sounds like I have been picked out of a hat opposed to wanting to help someone I dont know simply because I can! Non-directed is the term you are using for if you don’t like the accepted term altruistic.

    I was charged extra for travel insurance, though not by much. My private health insurance they have made a note that I donated a kidney but did not put any exclusions on the policy or charge me extra – and I have heard of some people in the USA having problems with health insurance but they have been in the minority. Your best bet on this is to contact a variety of insurance companies and ask them.

    All the best
    Di
    x

  • A J:

    Thanks again for sharing your experiences Di. Posted thanks over a year ago when we were first entered into a paired exchange pool. Hopefully not jinxing it by posting but hopefully had the final meeting today with the independent assessor after a real emotional rollercoaster. Thanks again.

  • Diane:

    Hi AJ,
    Thanks for posting and giving me an update. I always love to hear how people are getting on with the donation process. Yours is just around the corner now …. exciting times. Can imagine the emotional roller coaster trip ….. if you ever want to share please do either here or contact me direct via the contact page (link top right of page).

    Let us know when you get a date and know more
    All the best
    Di
    x

  • sara shayovitz:

    Hi Di
    Just updating you as I emailed you several months ago. Now on the register waiting to donate altruistically. I have found your blog informative and amusing at times. I share your frustration at waits and quite slow progress of whole journey. However it also reassured me that this is not unusual,problem is I like driving fast!
    Will let you know if you would like, when I have had op.
    Are you ever informed on progress of recipient?
    Best Wishes
    Sara

  • Diane:

    Hi Sara,
    Thank you for updating me. You are almost there – any day now! Yes please I would like to hear how you get on, very much so!
    recipient – I was told a couple of day after that the kidney seemed to be doing fine. Around a month later I got a letter form my recipient. It was sent to me via the hospital as of course names and addresses are not allowed and they were removed from the correspondence. But my recipient said how great they now felt. So tht was brilliant. I didn’t hear any more and that was fine, I was just happy I could donate.
    Keep in touch,
    love Di
    x

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