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Just thought I would post to update people. My evaluation tests have finished and as far as I am aware they are all okay. I have to see the consultant and independant assessor before approval is sought from the HTA.

However once approval is given (assuming it will be!) and I am put on the donor database things can start moving very quickly. The hospital will not put me on the database until they get my agreement. Now I need to make sure that I have a totally clear calendar free from committments. I need to have uncluttered time for a few weeks after the operation and also make sure that family that will be there to assist me in the early stages afterwards will also be available.

Having made the decision to donate a kidney that is what I am going to do but being unable to anticipate when the evaluation process would actually come to an end various family comittments were made and over next few weeks I will be keeping them.

Also being an altruistic donor means I am donating to a stranger and that is how I want it to stay. I truly believe that recipient and donor should remain anonymous and should I give out information in this blog that would lead the recipient or one of their friends or family to work out that I must be the donor …. well I cannot do that. So I wont be adding to my evaluation/donation process until a while after the donation. At that time I will give full details as to what the procedure was like etc etc. I hope you will understand my reasons for now keeping quiet, what with my committments and the need for total anonymity as far as the recipient is concerned.

I will be making other posts on the blog though so I wont be totally silent. And I will most certainly be back to post about the donation when the time is right.

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Kidney donation – altruistic

February 3rd 2009

My first appointment at the hospital to meet the surgeon and have some initial tests done. It was during the heavy snows we had but luckily once I had got a few miles out from home, the snow thinned and travelling wasn’t a problem.

There had been some mix up with the appointments and I was in the book for 30 minutes after the time in the appointments letter. The hospital was also  running 1.5 hours late and I had arrived 30 minutes early!! No matter, it gave me time to read up on literature there and just watch and listen as to what was going on in the reception area. I was struck by the assortment of people there that had kidney problems … young, old, mothers, fathers, youngsters … it was a reminder than anyone, any age can be seriously ill and need help. I had time sitting there to think about the struggles some people have  to try and lead a normal life. It made me realise I have been very lucky in life as regards my health. Whatever I have had wrong with me has easily been treated. Not so for thousands of people. I am so glad I made this decision to donate.  Sometimes being kept waiting for an appointment has its advantages as in this case – it opened my eyes even wider.

I saw the surgeon first, very nice guy. Very friendly, smiley face and good sense of humour. I immediately felt relaxed in his company.

He made sure I knew exactly what it was I was offering to do and explained that a Doctor would be assigned to me to look after my interests.  I would go through a very thorough medical assessment.  I would also have a psychologist and psychiatric report made. The whole team needs to know that I fully understand what I will be doing. That I understand the procedure and what could go wrong etc etc.  Once I pass the medical tests and the psychiatric report, the details are then sent for approval. If I am approved as a suitable kidney donor, then I will be put on the database and once a suitable recipient is found, arrangements will be made for the transplant.  The evaluation process can be between 3 and 6 months, but they anticipate that once accepted it will be a very short time before they locate a suitable match.  

They would remove my kidney in this hospital and then safely transport it to whichever hospital the recipient is in.

The surgeon asked me about my medical history and my families. We have all been clear of major illnesses that might affect the donation.   The only down side was that I am overweight. I thought that might get mentioned!  lol ! I was weighed and although my BMI (Body Mass Index) was just within the acceptable limit, the surgeon did advise I try to lose some weight.  My current weight would not hold up the operation, but if I could lose some then that would assist the  surgery and also my recovery afterwards.

I then saw one of the transplant nurses. She asked more questions re medical history etc and then organised some  tests:

Blood pressure
Blood taken for tests (about 8 tubes used)
Heart Trace
Chest X-ray.

  It was also explained to me that during the very strict and thorough evaluation process, at any stage they could find out I am not suitable as a donor, so I also have to prepare myself for the disappointment of not being able to help someone.

My biggest worry at the moment is losing weight. I have an under active thyroid which piled the weight on a few years ago and losing it  is extremely hard – I never used to have a problem with being able to control my weight, but now it is a real battle.  

Please Pray that I pass the evaluation process with flying colours.

My next appointment is April 17th when I see the doctor … regarding what exactly not too sure, will have to wait and see.

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